Advocacy, Science & More.
Vitamin B6: Patient’s with Hypophosphatasia (HPP) typically have high levels of Vitamin B6 in their blood. The level is not just high, it can be 5 to 6 times higher than the upper limit and because this is very common in HPP patients it is often used as a tool to help when diagnosing HPP. … Continue reading Vitamin B6 and Hypophosphatasia
This post is part of a paid sponsorship by Ferring Pharmaceuticals. All opinions are my own. As you all know, my wife and I faced infertility over the last couple of years and this was one of the toughest situations our marriage had to go through to date. We tried absolutely everything to get pregnant, … Continue reading FertiStrong: Infertility Application.
When I was diagnosed with my ultra-rare genetic disease Hypophosphatasia back in August 2017 I was told there was only one approved medicine to treat the disease and not every patient is eligible to get on the treatment. The main reason is that the drug is only approved for patients who have a specific form … Continue reading My Journey with Strensiq for Hypophosphatasia.
Every year May 19th is World Inflammatory Bowel Disease (IBD) day, which is a day where people from all over the world affected someway by IBD, come together to share our stories and raise awareness for the disease. This year the theme is "IBD Beyond Borders" which I think is a great theme that not … Continue reading World IBD Day 2018: IBD Beyond Borders
Today is hypophosphatasia awareness day and I wanted to talk about my new diagnosis and what this means for my health. If you want to learn in depth what the disease is you can read my article I posted yesterday ☞ Hypophosphatasia: What is it? Hypophosphatasia: My Story. My entire life I have dealt with skeletal … Continue reading Hypophosphatasia: My Story.
