Advocacy, Science & More.
Living with Crohn's Disease has had a pretty profound impact on my life as it does a lot of people. I went from barely being at the doctor to constantly there, on 20 pills a day trying to figure out what works and adhering to the medication. It’s been overwhelming and I wish I had … Continue reading Pack Health- IBD Health Coach
This post is part of a paid sponsorship by Ferring Pharmaceuticals. All opinions are my own. As you all know, my wife and I faced infertility over the last couple of years and this was one of the toughest situations our marriage had to go through to date. We tried absolutely everything to get pregnant, … Continue reading FertiStrong: Infertility Application.
When I was diagnosed with my ultra-rare genetic disease Hypophosphatasia back in August 2017 I was told there was only one approved medicine to treat the disease and not every patient is eligible to get on the treatment. The main reason is that the drug is only approved for patients who have a specific form … Continue reading My Journey with Strensiq for Hypophosphatasia.
Every year May 19th is World Inflammatory Bowel Disease (IBD) day, which is a day where people from all over the world affected someway by IBD, come together to share our stories and raise awareness for the disease. This year the theme is "IBD Beyond Borders" which I think is a great theme that not … Continue reading World IBD Day 2018: IBD Beyond Borders
October 30th is Hypophosphatasia Awareness Day and because I was recently diagnosed with this ultra-rare genetic disease I wanted to write two posts. One to go into detail about the disease using current research, and the second post about my own journey with the disease and diagnosis. Hypophosphatasia: Hypophosphatasia=HPP Alkaline Phosphatase= ALP Hypophosphatasia (HPP) is … Continue reading Hypophosphatasia: What is it?
