October 30th is Hypophosphatasia Awareness Day and because I was recently diagnosed with this ultra-rare genetic disease I wanted to write two posts. One to go into detail about the disease using current research, and the second post about my own journey with the disease and diagnosis. Hypophosphatasia: Hypophosphatasia=HPP Alkaline Phosphatase= ALP Hypophosphatasia (HPP) is … Continue reading Hypophosphatasia: What is it?
Every year May 19th is World (Inflammatory Bowel Disease) day, a day to recognize and raise awareness for Crohn's Disease, Ulcerative Colitis, and Indeterminate Colitis which are all inflammatory bowel diseases. For the more than 1.6 million Americans and over 5 million worldwide, every day is world IBD day. Every day we wake up and … Continue reading World IBD Day 2017: Why I am thankful for my IBD
I can't believe that 2016 is over. This year has had a lot of ups and downs in regards to my health, schooling, and personal life. It has been one of those years that I try to grow from and instead of thinking about how bad it has been I like to think of the … Continue reading 2016: A year in review.
Hey guys! Today at 3PM EST Bentley and I (Aaron) are holding a reddit AMA about pursuing a PhD and having IBD as a part of IBD Awareness week! With that, we have to provide proof that we are actually the ones hosting the AMA so we took pictures! We hope you can join us! … Continue reading Reddit AMA GradSchool & IBD- Proof!
The main theme of Inflammatory Bowel Disease (IBD) Awareness week (December 1st-7th) this year is making IBD visible. What does this mean? IBD is considered an "Invisible Illness" which means that even though we don't look sick on the outside, our insides show a whole different story. I can't tell you how many times I … Continue reading Making IBD Visible: IBD Looks Like Me.